Keaton’s Kiddo Update – Lea

In the Fall of 2023, Keaton’s Kiddo Kodiak was diagnosed with two rare and aggressive forms of cancer: Mixed Acute Myeloid Leukemia (AML) and Myelodysplastic Syndrome (MDS) also known as ‘preleukemia.’

Their journey began one year earlier, in the Fall of 2022, when Kodiak was struck with a series of different seasonal illnesses. Kodiak’s mom Tonya shares: “In September, he got COVID, and then in November it was the flu, and then December RSV.”

Months before a clear diagnosis, Ellora was experiencing a loss of appetite, night sweats, and oversleeping. For Ellora, these symptoms were seen as normal for her or seen as natural changes in the growth of a 2-year-old. Eventually, she developed little spots on her hands and unexplained bruises on her body, which the doctors deemed Idiopathic Thrombocytopenic Purpura (ITP), but after seeing an informative TikTok video on the symptoms Ellora was experiencing, her mom’s gut told her it was something more than a bleeding disorder.

14-year-old Samerah, best known as Sam has been battling quite the challenging journey, but with the love and support of her family, friends, and community she has been able to overcome so much. At the very young age of 2 months old, Sam was diagnosed with Neurofibromatosis. Neurofibromatosis is not an isolated disorder. It causes several different conditions and can lead to the development of tumors on the brain, spine, and the nerves that send signals between the brain and spinal cord.