Kyle ~ Keaton’s Childhood Cancer Awareness Ambassador

Meet Keaton super kiddo Kyle! Kyle is 16 years old, and enjoys playing on his Nintendo switch. He also likes Star Wars, Disneyland, Mario series and Harry Potter. At just 3 1/2 years old, Kyle was first diagnosed with Pilocytic Astrocytoma, a slow-growing tumor of primary central nervous system which can be located in the brain or spinal cord. After being in remission for 5 years, in April of 2021, Kyle and his family found out the devastating news that Kyle once again has a brain tumor, but this time, on the opposite side of his brain from where his first tumor was.

The side effects of Kyle’s diagnosis has unfortunately impacted his gross motor functioning. He is now using a power wheelchair to get around and when he has the strength, he becomes a superhero and uses his forearm crutches. Despite these challenges, Kyle is a fighter, a strong young man and a warrior who is battling cancer for the second time. With a very supportive family by his side, Kyle is very close to his mom and sister. With an hour and a half round trip commute, Mom has been such a huge support for him, helps him get around, and takes him to his weekly appointments.

The Family Navigator team has been able to meet Kyle and his mom during their family’s Hope Chest Delivery. So far the team has also supported their family with gas cards to support with their long commute for appointments and a financial grant to alleviate any other financial stress they may have. As the 2021 school year begins, the Family Navigator team were happy to share more joy-filled experiences and provided Kyle and his sister backpacks full of supplies to start off the new school year.

Kyle’s favorite quote “Secretly hoping Cancer gives me superpowers”

You are not in this fight alone Kyle!

Meet Keaton’s Kiddo Emily

In honor of Brain Cancer Awareness Month, we’d like to introduce you to Keaton’s Kiddo Emily, a remarkable young fighter who has been part of our Keaton’s Child Cancer Alliance family since 2018. “Our journey began in Aug 2018, Emily our 8-year-old was waking up everyday with headaches and throwing up in the morning. After a CT Scan, we were told a MRI was needed as they saw a mass in her brain. Worse fear ever is hearing they found a mass, and you would need to be admitted….

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Honoring Joy on National Down Syndrome Day

Today, on National Down Syndrome Day, we recognize that children with Down Syndrome are 10 to 20 times more likely to develop leukemia. This unique connection between childhood cancer and Down Syndrome—a reality for many families, including our beloved Keaton’s Kiddo, Joy.

While the focus is understandably on the child battling cancer, siblings face their own emotional challenges. They may experience feelings of worry, fear, confusion, or even guilt, and it’s important to acknowledge their role and provide support for them as well.

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The Unsung Heroes

When a child is diagnosed with cancer, the whole family is impacted. In this journey, siblings often become the unsung heroes—quietly showing strength, compassion, and resilience beyond their years.

While the focus is understandably on the child battling cancer, siblings face their own emotional challenges. They may experience feelings of worry, fear, confusion, or even guilt, and it’s important to acknowledge their role and provide support for them as well.

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