Hope, Strength, and Healing for families coping with a child cancer diagnosis

Meet Avarie diagnosed with Acute Pre B-Cell Lymphoblastic Leukemia

13 year old Avarie, who also likes to go by “Stinks,” is a spirited young man with a fun personality and a big heart. Like many boys his age, Avarie enjoys basketball and football, especially the 49ers. He also enjoys spending time with his siblings and older cousin.

In March of 2018, Avarie and his family sadly learned that he had been diagnosed with Acute Pre B-Cell Lymphoblastic Leukemia. Despite this devastating news, Avarie has continued to stay optimistic and is even thinking of ways he can help other children and their families going through a similar experience. Avarie created his own t-shirt brand that he calls Worst Effective. The inspiration behind the brand name comes from his personal experience. Avarie feels he has taken a very negative situation and has turned it into something that can have a positive impact on other children and their families.

Two of our Family Navigators had the pleasure of meeting Avarie and his family while delivering our signature ‘Hope Chest’ to them at the hospital. It was immediately clear to our Family Navigators how strong and resilient Avarie and his family are. Although his circumstances are incredibly difficult, ‘Stinks’ remains positive and optimistic while keeping his humor and amazing personality.

 

Meet Keaton’s Kiddo – Jonhelle

Meet Keaton Kiddo Jonhelle, a sweet 9-year-old girl who loves painting, drawing, and biking. At just 6-years old, in August of 2020, Jonhelle was diagnosed with Acute Lymphoblastic Leukemia, also known as ALL. With her diagnosis occurring in the middle of the COVID-19 Pandemic, her family came across many emotional and financial stressors, and faced much isolation as a family, as Jonhelle had two siblings at home.

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Keaton’s Kiddo Update – Lea

Princess Lea, 6 years old, loves playing outdoors, painting, coloring, playing with her siblings, and everything Jojo Siwa! Lea’s life-changing journey began November 30, 2020 in the midst of COVID, when she began experiencing excruciating pain. After 11 days of multiple tests and having her bone marrow examined, Lea was diagnosed with Acute Lymphoblastic Leukemia (ALL) at the age of 3.5. Over the next 2 years she received aggressive treatment and participated in a clinical trial as well. She has been in remission since February 2021 and continued her active treatment journey.

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Meet Keaton’s Kiddo – Santiago

Meet Keaton’s Kiddo Sweet Santiago! He is a 2-year-old who loves being outside and playing. Santiago was diagnosed with a Wilms Tumor about 8 months ago. Wilms tumor is a rare kidney cancer that primarily affects children. Also known as nephroblastoma, it is the most common cancer of the kidneys in children. This diagnosis did not stop Santiago from being resilient!

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