Hope, Strength, and Healing for families coping with a child cancer diagnosis

Meet Keaton Kiddo ~ Ashley

Meet Ashley; a positive, strong, bright 16-year old that enjoys Minecraft and art.  Ashley’s journey battling Childhood Cancer began when she was just 9 months old and diagnosed with Ewing’s Sarcoma.  Ewing’s Sarcoma is a rare cancerous tumor that grows in your bones or on the soft tissue around your bones, such as cartilage or nerves.  After winning her battle with cancer the first time, Ashley, unfortunately, was diagnosed with Ewing’s Sarcoma for the second time, after 15 years.  As you can imagine, this news was devastating for Ashley and her family.  Thankfully, she has a great support system behind her and they are ready to fight their second battle against childhood cancer.

While being diagnosed with Ewing’s Sarcoma for the second time during COVID-19, Ashley’s family has faced even more challenges and isolation.  Fortunately, they have been keeping her spirits up by decorating her hospital room, keeping in contact with friends and family through Zoom and FaceTime.  Ashley also participated in the first-ever Keaton’s Child Cancer Alliance virtual teen event.

From Ashley’s first diagnosis up to now, the family has highlighted the great support they receive from their wonderful medical team, social workers and child life specialists at Kaiser.  Her family called this unexpected experience a “strange phenomenon” but takes this journey day by day while remembering who and what they do have.  Over time, they have seen the advances in science and medical treatments and touched on how great it is to now have organizations, like Keaton’s, that are already there and willing to reach out to support the families during such a difficult time.

Since being referred to Keaton’s, our Family Navigator team has supported Ashley and her family with a financial grant, gas cards, food cards and a Hope Chest.

“Our hope is that other families will know they aren’t the only ones.  This is Ashley’s second battle with Ewing’s Sarcoma.  She was just 9 months old the first time. We had 15 years, no cancer, which is rare and now we are ready to fight this battle and have many more years of fun!  Thank you again for our cards/gifts and also Brittany’s (Ashely’s sibling).  Your kindness is a true blessing.  I pray God blesses each one of you 100x over.” – Ashley’s mom

Meet Keaton’s Kiddo – Kodiak

In the Fall of 2023, Keaton’s Kiddo Kodiak was diagnosed with two rare and aggressive forms of cancer: Mixed Acute Myeloid Leukemia (AML) and Myelodysplastic Syndrome (MDS) also known as ‘preleukemia.’

Their journey began one year earlier, in the Fall of 2022, when Kodiak was struck with a series of different seasonal illnesses. Kodiak’s mom Tonya shares: “In September, he got COVID, and then in November it was the flu, and then December RSV.”

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Meet Keaton’s Kiddo – Ellora

Months before a clear diagnosis, Ellora was experiencing a loss of appetite, night sweats, and oversleeping. For Ellora, these symptoms were seen as normal for her or seen as natural changes in the growth of a 2-year-old. Eventually, she developed little spots on her hands and unexplained bruises on her body, which the doctors deemed Idiopathic Thrombocytopenic Purpura (ITP), but after seeing an informative TikTok video on the symptoms Ellora was experiencing, her mom’s gut told her it was something more than a bleeding disorder.

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Meet Keaton’s Kiddo – Samerah

14-year-old Samerah, best known as Sam has been battling quite the challenging journey, but with the love and support of her family, friends, and community she has been able to overcome so much. At the very young age of 2 months old, Sam was diagnosed with Neurofibromatosis. Neurofibromatosis is not an isolated disorder. It causes several different conditions and can lead to the development of tumors on the brain, spine, and the nerves that send signals between the brain and spinal cord.

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