Support, Advocacy, & Important Resources
American Cancer Society
The site provides a resource search engine based on your zip code.
Association of Cancer Online Resources
This Web site offers access to mailing lists and unique Web sites. It offers support groups in Spanish and English.
Brandon’s Foundation, Inc.
Assists in fund-raising to support cancer research and aids families that have had to relocate out of state for outpatient treatment for their child.
Cancer Fund of America
A nonprofit organization that offers medical supplies nationally. The Web site lists available supplies.
Cancer Hope Network
Offers one-on-one support for cancer patients by attempting to link them with a volunteer with a similar diagnosis.
Offers support services, school and community education, counseling, recreation programs, and bereavement services. This site is especially for Jewish children and their families.
Children with Leukemia
This Web site offers information to parents on how to discuss a cancer diagnosis and the basics of treatment with others. It was designed by a parent who lost a daughter to leukemia.
Children’ Cancer Association
This site offers a comprehensive national directory of resources.
Children’s Brain Tumor Foundation
This Web site offers excellent tips and in formation to parents on topics such as supporting their child during a hospital stay, finding a second opinion, the treatment team and supporting your child after the operation.
Cure for Lymphoma Foundation
Offers patient-to-patient support via telephone, e-mail or letters. It also has a $500. grant for quality-of-life expenses not covered by insurance. The application is online.
Cancer patients and their advocates are pr
ovided a national online
directory of lodging
accommodations near their hospital.
Leukemia and Lymphoma Society of America
This site offers back-to-school information, locations of support groups and a resource center.
This Web site offers helpful information on pediatric cancer and service/learning projects designed to help kids battling cancer and their families.
National Dissemination Center for Children with Disabilities; 800-695-0285
Contains information on each states vocational and educational programs as well as federal government contact information.
National Cancer Survivors Day Foundation
National Cancer Survivors Day is the world’s largest cancer-survivor event. It’s celebrated on the first Sunday of June. Inform
ation about the event, as well as a free celebration-planning kit, is available from the Foundation.
National Respite Locator Service
Lists respite services for every state, including contact numbers.
R.A. Bloch Cancer Foundation
This organization links people who have the same cancer diagnosis. The Web site also has helpful information on getting a second opinion.
Ronald McDonald House Charities
This site has guidelines and Ronald McDonald House locations across the country.
Stand Up To Cancer
Stand Up To Cancer is a charitable services fund of the Entertainment Industry Foundation that is raising awareness in the
battle against cancer and raising money for research to find a cure for cancer. This site provides lengthy resource lists for cancer
advocacy, support, and cancer centers as well as governmental and research organizations.
The Never-Ending Squirrel Tale
Offers suggestions to parents on everything from diet choices to how to decorate the hospital room. It also has a chat room for families.
The International Cancer Alliance for Research and Education (ICARE)
This nonprofit organization provides user-friendly cancer information to each patient (and to their physicians) on an on-going, person-to-person basis. It has several online-support groups.
The Kelly Davidson Pediatric Cancer Foundation
The organization provides a “care kit” of educational materials specific to the 11 types of pediatric cancer.
The Ulman Cancer Fund for Young Adults
This site offers education, support, resources and prevention tips to young adults affected by cancer.
The Wellness Community
Provides free services, including professionally led support groups, educational workshops, stress-management and mind/body classes, nationwide in a homelike, community setting.
University of Pennsylvania Cancer Center
Offers questions and answers on various topics, including sexuality, fertility, psychosocial issues and coping.
Provides information and awareness for children and adolescents with cancer and their families, to advocate for their needs, and to support research so every child survives and leads a long and healthy life. They are the largest publisher and distributor of free childhood cancer books in the country.
CureSearch National Childhood Cancer Foundation is dedicated to raising private funds for childhood cancer research for the Children’s Oncology Group, the world’s largest cooperative cancer research organization.
Childhood Cancer Guides
American Cancer Society-American Cancer Society Summer Camps;(800) ACS-2345
Nationwide, community-based, voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
American Society of Pediatric Hematology/Oncology; (847) 375-4716
ASPHO is a multidisciplinary organization dedicated to promoting optimal care of children and adolescents with blood disorders and cancer by advancing research, education, treatment and professional practice.
Beads of Courage; 520.331.1984
Beads of Courage is a resilience-based intervention designed to support and strengthen the protective resources in children coping with serious illness. Through the program children tell their story using colorful beads as meaningful symbols of courage that commemorate milestones they have achieved along their unique treatment path.
This site is for children, parents, siblings and friends. It discusses everything from school reentry to late effects of treatment to stories from patients and their families.
Cancer Care; (800) 813-HOPE
CancerCare is a national nonprofit organization that provides free, professional support services for anyone affected by cancer.
Parents Against Cancer, Inc.; (562) 943-5626
This web site to keep you in touch with things happening both in the hospital and in the outpatient setting. It is also a channel to find out about many of the events and people that you care about. PAC has available the L.I.S.A. fund to provide emergency assistance to families. Provides funds for such things as busses to camp, refreshments at functions, etc. Maintains a resource library on the hospital floor with pertinent information for our families and much more.
Children’s Cancer Community: provides support groups, cancer survival kits, scholarships, a cancer library, family assistance, special events and activities for families.